Editor's Picks

Shorts

Balancing new motherhood and a rare cancer diagnosis

Diffuse large B-cell non-Hodgkin lymphoma

In late 2020, when Paula Hall should’ve been basking in the newness of motherhood, she was instead thrust into intensive treatment for a rare blood cancer.

Shorts

A lesson in advocacy: Linda’s fight for health equality

Rheumatoid Arthritis

Linda Roy has spent the majority of her life immunocompromised. Now, from her home in a remote New Brunswick community, she’s turned her experience into a passion for helping others.

Shorts

Life after transplant: Afsana’s journey with a rare liver disease

Primary Sclerosing Cholangitis

At just 16 years old, Afsana Lallani was diagnosed with a rare liver disease. Only a few short years later, she found herself in urgent need of a life-saving organ transplant.

RESOURCES

Read CIAN's position paper

Learn about the CIAN's position on the challenges and recommendations for achieving an equitable future for immunocompromised Canadians.

In 2020, a survey by Statistics Canada found that approximately 14% of Canadians aged 15 years or older are living with compromised immune systems. In other words, over 5,450,200 Canadians are immunocompromised.

Source: Statistics Canada.

DID YOU KNOW?

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Lisa’s story
Essential thrombocythemia (ET)

Patient Voice spoke with Lisa Taylor to learn about the urgent drug shortage facing Canada’s essential trombocythemia (ET) community.

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February 18, 2025
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2024 was the year of building consensus — let’s resolve to make 2025 the year of action

Last year, we defined patient engagement and committed to embedding patient experience into Canada’s health care system. This year must be about brave, authentic, and meaningful alliances that bring these ideas to life.

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Postal code health care and the real impact on Canadian lives

Three Canadians living with vasculitis, a rare life-threatening disease, are speaking up about the inequities in care and treatment access, and why advocacy is more important than ever.

LONGFORMS

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In conversation with SRx Health’s Adesh Vora

Industry Voice spoke with Adesh Vora, Founder, President, and CEO of SRx Health Solutions, to explore the patient care gaps that inspired him to found his company, discuss the challenges associated with delivering patient-centric care models, and learn why he’s optimistic that the future will be bright for those living with chronic illness and rare disease.

INDUSTRY VOICE

April 1, 2024
April 1, 2024
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