During her fertility journey, Hannah was diagnosed with paroxysmal nocturnal hemoglobinuria, a rare blood disorder that reshaped her path into motherhood and made every day a battle against fatigue.

Patient Voice sat down with Beth Vanstone and Alice Williams, rare disease advocates and Ontario Rare Action Group co-founders, to discuss diagnosis, treatment and care gaps — and how grassroots advocacy can drive meaningful change.

Following years of debilitating neuromyelitis optica spectrum disorder (NMOSD) relapses, Jennifer Drolet has found stability — and hope — through proactive care and close collaboration with her neurologist.

AI tools are helping patients, caregivers, and clinicians make sense of complex health data — and turn insights into action.