Nocturnal epilepsy has changed how I think about love. Instead of sweeping romantic gestures, I’ve come to appreciate love that shows up as quiet, steady acts of care.
The hepatitis delta virus can progress quickly and quietly, and historically Canada’s response has been slow and uncoordinated. Patients, clinicians, and public health advocates are working tirelessly to change that.
Patient Voice spoke with Dr. Jocelyn Garland to learn about two ultra-rare forms of kidney disease that can lead to kidney failure if untreated: C3 glomerulopathy (C3G) and immune complex-mediated membranoproliferative glomerulonephritis (IC-MPGN).
Women’s cancers + Parent loss
Patient Voice spoke with Viv Chan about losing her mother, Kitty, to cancer, and the unique tribute she’s created to honour her memory.
Authentic friendships, both in-person and online, became a lifeline for me. They offered strength and allyship when I needed them most.
In 2019, a CIDP diagnosis derailed Richard Habel’s life. Seven years later, he has reclaimed much of it — but continues to navigate the unpredictability of this rare autoimmune disorder.
Migraine
Thirteen thousand kilometres from home and incapacitated by the fog of migraine, Shruti couldn’t work, couldn’t parent, and was beginning to lose hope in an easier future. But, with the help of the migraine community, she was able to find her voice.
Breast Cancer
Learn how MJ DeCoteau turned her mother’s death into a mission — building a community of support, sisterhood, and advocacy a new generation of Canadians impacted by breast cancer needed.
Membranoproliferative glomerulonephritis
Alex was on maternity leave from her career in the classroom when she was diagnosed with MPGN, an ultra-rare kidney disease that threatened her future as both a teacher and a mom.
Common Variable Immune Deficiency (CVID)
Patient Voice spoke with Steve Walters about the rare immunodeficiency symptoms that went overlooked, and how he's using his unique skillset to improve the diagnostic journey for others.
Lupus
Patient Voice spoke with Isabella Collazos about how she’s learned to view her lupus diagnosis as an opportunity for education and advocacy, while finding strength in faith and community.
Patient Voice is an independent, Canadian-owned digital publisher and online community devoted to elevating the voices of patients, caregivers and clinicians as a means of effecting meaningful and positive change.
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