Nocturnal epilepsy has changed how I think about love. Instead of sweeping romantic gestures, I’ve come to appreciate love that shows up as quiet, steady acts of care.
Novel therapies are bringing hope — and clearer skin — to Canadians living with the debilitating skin condition. Now, advocates are teaming up to ensure that relief is within reach for those who need it.
Patient Voice spoke with Dr. Jocelyn Garland to learn about two ultra-rare forms of kidney disease that can lead to kidney failure if untreated: C3 glomerulopathy (C3G) and immune complex-mediated membranoproliferative glomerulonephritis (IC-MPGN).
Migraine
Patient Voice spoke with Nicole Guerrieri about the crippling uncertainty of living with migraine, and how the loss of her beloved dog, Moose, has exacerbated her years-long health struggles.
Authentic friendships, both in-person and online, became a lifeline for me. They offered strength and allyship when I needed them most.
The hepatitis delta virus can progress quickly and quietly, and historically Canada’s response has been slow and uncoordinated. Patients, clinicians, and public health advocates are working tirelessly to change that.
Attention Deficit Hyperactivity Disorder (ADHD)
A later-in-life diagnosis led Lisa McCoy to a startling realization: the challenges she'd spent decades blaming on herself had a name all along — ADHD. Now, she's working to ensure that all Canadians impacted by ADHD have access to the supports they need to thrive.
CLL + Premature Ovarian Failure
Diagnosed with chronic leukemia at 34, ER nurse Janice Skoblenick also learned she'd never be able to have children of her own. But a chance swipe the night before a hospital appointment led her to Andrew — and to a life, and a home, they’re now rebuilding from the ground up.
Acute Myeloid Leukemia (AML)
Mai Duong's aggressive leukemia diagnosis led to a devastating discovery: because of her Vietnamese heritage, she had almost no chance of finding a stem cell match. Her survival, made possible by a complete stranger, inspired her to close the donor diversity gap for all Canadians in need.
Complex health journey
Patient Voice spoke with Montana Skurka about her lifelong health challenges that began in her youth, and how she’s come to redefine “well-being” as an adult.
Women’s cancers + Parent loss
Patient Voice spoke with Viv Chan about losing her mother, Kitty, to cancer, and the unique tribute she’s created to honour her memory.
Patient Voice is an independent, Canadian-owned digital publisher and online community devoted to elevating the voices of patients, caregivers and clinicians as a means of effecting meaningful and positive change.
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