Nocturnal epilepsy has changed how I think about love. Instead of sweeping romantic gestures, I’ve come to appreciate love that shows up as quiet, steady acts of care.
In 2019, a CIDP diagnosis derailed Richard Habel’s life. Seven years later, he has reclaimed much of it — but continues to navigate the unpredictability of this rare autoimmune disorder.
After years without answers, my diagnosis revealed serious gaps in how Parkinson’s is understood, studied, and treated in women.
When Casey is running, biking, or swimming, her muscles are a fathomless reservoir of strength. But in daily life, dystonia turns those same muscles against her, pushing her to better understand her body, her health, and what they truly need.
Authentic friendships, both in-person and online, became a lifeline for me. They offered strength and allyship when I needed them most.
Following years of debilitating neuromyelitis optica spectrum disorder (NMOSD) relapses, Jennifer Drolet has found stability — and hope — through proactive care and close collaboration with her neurologist.
Parental Loss & Grief
Patient Voice spoke with Lo Obedkoff about the experience of losing both of her parents at a young age, and how those losses continue to guide her life.
GASTROESOPHAGEAL CANCER & CAREGIVING
Patient Voice spoke with Sarah Murphy-Dyson and Andrew Mackay about navigating the mental, professional, and financial toll of Andrew’s cancer diagnosis—and how their relationship has grown stronger through it.
Anaplastic astrocytoma
Patient Voice spoke with Catherine Wreford about the profound mindset shift that followed her rare brain cancer diagnosis.
Nocturnal epilepsy
Patient Voice spoke with Hannah Newport about living with nocturnal epilepsy, and how love helped her move beyond anxiety and fear.
During her fertility journey, Hannah was diagnosed with paroxysmal nocturnal hemoglobinuria, a rare blood disorder that reshaped her path into motherhood and made every day a battle against fatigue.
Patient Voice is an independent, Canadian-owned digital publisher and online community devoted to elevating the voices of patients, caregivers and clinicians as a means of effecting meaningful and positive change.
.avif){kind=logo}
