Patient Voice

A quiet kind of love: How ordinary yet meaningful gestures became my new version of romance

Nocturnal epilepsy has changed how I think about love. Instead of sweeping romantic gestures, I’ve come to appreciate love that shows up as quiet, steady acts of care.

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Falling through the cracks: How stigma, screening gaps, and inequitable access to care are failing Canadians with hepatitis delta virus

The hepatitis delta virus can progress quickly and quietly, and historically Canada’s response has been slow and uncoordinated. Patients, clinicians, and public health advocates are working tirelessly to change that.

PERSPECTIVES

Understanding C3G and IC-MPGN

Patient Voice spoke with Dr. Jocelyn Garland to learn about two ultra-rare forms of kidney disease that can lead to kidney failure if untreated: C3 glomerulopathy (C3G) and immune complex-mediated membranoproliferative glomerulonephritis (IC-MPGN).

Latest Features

Shorts

Illustrating the reality of migraine: Shruti’s struggle to be taken seriously

Migraine

Thirteen thousand kilometres from home and incapacitated by the fog of migraine, Shruti couldn’t work, couldn’t parent, and was beginning to lose hope in an easier future. But, with the help of the migraine community, she was able to find her voice.

Perspectives

Friendship as medicine: How building true connections became my healing

Authentic friendships, both in-person and online, became a lifeline for me. They offered strength and allyship when I needed them most.‍

LONGFORMS

Rebuilding, one step at a time: Richard’s CIDP journey

In 2019, a CIDP diagnosis derailed Richard Habel’s life. Seven years later, he has reclaimed much of it — but continues to navigate the unpredictability of this rare autoimmune disorder.

SHORTS

Shorts

Building the community she wishes had existed for her own mother: MJ’s story

Breast Cancer

Learn how MJ DeCoteau turned her mother’s death into a mission — building a community of support, sisterhood, and advocacy a new generation of Canadians impacted by breast cancer needed.

SHORTS

Shorts

Teaching by example: How Alex learned self-advocacy through rare kidney disease

Membranoproliferative glomerulonephritis

Alex was on maternity leave from her career in the classroom when she was diagnosed with MPGN, an ultra-rare kidney disease that threatened her future as both a teacher and a mom.

SHORTS

Shorts

Exposing gaps in Canada’s diagnostic and therapeutic processes: Steve’s story

Common Variable Immune Deficiency (CVID)

Patient Voice spoke with Steve Walters about the rare immunodeficiency symptoms that went overlooked, and how he's using his unique skillset to improve the diagnostic journey for others.

SHORTS

Shorts

Finding purpose, strength, and faith while confronting lupus: Isabella’s story

Lupus

Patient Voice spoke with Isabella Collazos about how she’s learned to view her lupus diagnosis as an opportunity for education and advocacy, while finding strength in faith and community.

SHORTS

Shorts

Defying expectations: How Casey outruns (and outswims, and outcycles) dystonia

When Casey is running, biking, or swimming, her muscles are a fathomless reservoir of strength. But in daily life, dystonia turns those same muscles against her, pushing her to better understand her body, her health, and what they truly need.