Nocturnal epilepsy has changed how I think about love. Instead of sweeping romantic gestures, I’ve come to appreciate love that shows up as quiet, steady acts of care.
Novel therapies are bringing hope — and clearer skin — to Canadians living with the debilitating skin condition. Now, advocates are teaming up to ensure that relief is within reach for those who need it.
Patient Voice spoke with Dr. Jocelyn Garland to learn about two ultra-rare forms of kidney disease that can lead to kidney failure if untreated: C3 glomerulopathy (C3G) and immune complex-mediated membranoproliferative glomerulonephritis (IC-MPGN).
Chronic pain
Patient Voice spoke with Jacqueline Zonneville about the long road to a clear picture of her complex health challenges, her recovery after spine surgery, and her hopes for better access to care.
Authentic friendships, both in-person and online, became a lifeline for me. They offered strength and allyship when I needed them most.
The hepatitis delta virus can progress quickly and quietly, and historically Canada’s response has been slow and uncoordinated. Patients, clinicians, and public health advocates are working tirelessly to change that.
Injury and amputation
Patient Voice spoke with Jeff Tiessen about the accident that cost him both arms at age 11, a lawyer who said his life was essentially over, and how he proved otherwise as a Paralympian, entrepreneur, and community builder.
Patient Voice spoke with Alishba Afaq about her path to an ADHD diagnosis and about how effective treatments and customized supports have made it possible for her to thrive.
Attention Deficit Hyperactivity Disorder (ADHD)
Patient Voice spoke with Craig Bannon about how his son’s ADHD diagnosis led to his own, and about the role community has played in his journey.
Migraine
Patient Voice spoke with Nicole Guerrieri about the crippling uncertainty of living with migraine, and how the loss of her beloved dog, Moose, has exacerbated her years-long health struggles.
A later-in-life diagnosis led Lisa McCoy to a startling realization: the challenges she'd spent decades blaming on herself had a name all along — ADHD. Now, she's working to ensure that all Canadians impacted by ADHD have access to the supports they need to thrive.
Patient Voice is an independent, Canadian-owned digital publisher and online community devoted to elevating the voices of patients, caregivers and clinicians as a means of effecting meaningful and positive change.