Shorts
COLLECTIONS
Canada’s Rare Voices

Stories of rare strength, perseverance, and hope from Canada’s rare disease communities — from coast to coast.

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FEATURE
LONGFORMS
The dawn of a new era for Canadians living with cholangiocarcinoma

Medical advancements and a new grassroots patient community are helping to rewrite the stories of Canadians impacted by rare and aggressive biliary tract cancers, like Jennifer Nielsen.

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Perspectives
PERSPECTIVES
2024 was the year of building consensus — let’s resolve to make 2025 the year of action

Last year, we defined patient engagement and committed to embedding patient experience into Canada’s health care system. This year must be about brave, authentic, and meaningful alliances that bring these ideas to life.

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Latest Features

Shorts

Ken’s story

Parkinson’s disease

Living with Parkinson’s disease has been challenging for Ken Jenkins but with the support of his family and a treatment plan that’s right for him, he’s found a renewed sense of hope and the ability to enjoy his retirement with his loved ones.

Perspectives

2025: Canada still only developed country with no rare disease plan

To truly help rare disease patients, Canada must turn promises into action and funding.

LONGFORMS

Regaining balance and restoring calm following a myelofibrosis diagnosis

For years, Kristen Hummel has leaned on community, family, faith, and her care team for strength and support. Now, she’s found joy in providing guidance and hope to other Canadians impacted by rare blood cancers.

SHORTS

Shorts

Joel’s story

Myxoid liposarcoma

Patient Voice spoke to Joel Cuthbert about how his rare cancer journey has inspired him to support others going through similar experiences.

SHORTS

Shorts

Sabrina’s story

Lung cancer and Grief

Patient Voice sat down with Sabrina Szabo on the third anniversary of her father Philip’s passing to explore the complex emotions associated with grief.

SHORTS

Shorts

Caitlin’s story

Parkinson’s disease

Patient Voice sat down with Caitlin Nagy to discuss how she’s working to change the narrative for women living with Parkinson’s disease.

UNITING CANADIAN PATIENTS,
One STORY AT A TIME.
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