Lisa’s story

Essential thrombocythemia (ET)

Patient Voice spoke with Lisa Taylor to learn about the urgent drug shortage facing Canada’s essential trombocythemia (ET) community.

2024 was the year of building consensus — let’s resolve to make 2025 the year of action

Last year, we defined patient engagement and committed to embedding patient experience into Canada’s health care system. This year must be about brave, authentic, and meaningful alliances that bring these ideas to life.

Postal code health care and the real impact on Canadian lives

Three Canadians living with vasculitis, a rare life-threatening disease, are speaking up about the inequities in care and treatment access, and why advocacy is more important than ever.