Start with what moves you, protect your soul as you move, forward, and leave your words in places that will take good care of them.
Rheumatic conditions are often invisible—it’s likely you unknowingly pass someone living with one every day in the street. But, for these patients to thrive, they must be seen and heard.
While cutaneous T-cell lymphomas are extremely rare, they’re also easily misdiagnosed. If you’re experiencing unexplained skin-related symptoms, knowing what to look for and which tests to request can help expedite diagnosis.
CHD2 myoclonic encephalopathy
Patient Voice spoke with Sandra Markus about her son Zach’s ultra-rare disease diagnosis and why it’s proven so hard to find him appropriate support as he ages into adulthood.
Learning how to speak up and advocate for oneself can greatly impact patients’ care and health outcomes.
New therapies have been shown to potentially slow the progression of spinal muscular atrophy (SMA) — so why are many adult patients unable to access them?
Proximal femoral focal deficiency
Patient Voice spoke with Nasif Chowdhury about growing up with a limb difference, and his path to representing Canada in wheelchair basketball.
Juvenile Idiopathic Arthritis / MAS
Patient Voice spoke with gym owner and powerlifter Zac Spinosa about the experience that turned his life upside down, and the roles movement and community have played in his recovery.
Undiagnosed genetic condition
Patient Voice spoke with Jeff Norgren and Michelle Hooey about how their youngest daughter Goldie has changed their lives for the better, and why they’ve chosen to share their rare disease journey with the world.
Acute myeloid leukemia (AML)
Patient Voice spoke with Jessie Willis about her blood cancer journey, and how her experience as a patient has helped to make her a better doctor.
Breast cancer
Patient Voice spoke with Jeanne Beker about how fashion helped her maintain her sense of self throughout her breast cancer journey.
Patient Voice is an independent, Canadian-owned digital publisher and online community devoted to elevating the voices of patients, caregivers and clinicians as a means of effecting meaningful and positive change.
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