Canada’s Rare Voices

Stories of rare strength, perseverance, and hope from Canada’s rare disease communities — from coast to coast.

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The dawn of a new era for Canadians living with cholangiocarcinoma

Medical advancements and a new grassroots patient community are helping to rewrite the stories of Canadians impacted by rare and aggressive biliary tract cancers, like Jennifer Nielsen.

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2024 was the year of building consensus — let’s resolve to make 2025 the year of action

Last year, we defined patient engagement and committed to embedding patient experience into Canada’s health care system. This year must be about brave, authentic, and meaningful alliances that bring these ideas to life.

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