Three Canadians living with vasculitis, a rare life-threatening disease, are speaking up about the inequities in care and treatment access, and why advocacy is more important than ever.
Parkinson’s disease
Living with Parkinson’s disease has been challenging for Ken Jenkins but with the support of his family and a treatment plan that’s right for him, he’s found a renewed sense of hope and the ability to enjoy his retirement with his loved ones.
To truly help rare disease patients, Canada must turn promises into action and funding.
For years, Kristen Hummel has leaned on community, family, faith, and her care team for strength and support. Now, she’s found joy in providing guidance and hope to other Canadians impacted by rare blood cancers.
Myxoid liposarcoma
Patient Voice spoke to Joel Cuthbert about how his rare cancer journey has inspired him to support others going through similar experiences.
Lung cancer and Grief
Patient Voice sat down with Sabrina Szabo on the third anniversary of her father Philip’s passing to explore the complex emotions associated with grief.
Patient Voice sat down with Caitlin Nagy to discuss how she’s working to change the narrative for women living with Parkinson’s disease.
